Funding search · Down syndrome · Connecticut
Who funds Down syndrome work in Connecticut
15 funders have a record of paying for Down syndrome work by Connecticut recipients: 55 grants totaling $3.0M, most recently in 2025 — mostly private foundations, plus grantmaking charities. The largest by matched giving are Tull Family Foundation ($1.4M), Hugh and Patricia Okane Foundation ($28,592) and Rett Syndrome Research Trust ($697,314).
From IRS Form 990-PF and 990 Schedule I filings, 2019–2025. Grants already paid to Connecticut recipients — evidence of what these funders back, not open calls.
Largest: $750,000 to RETT SYNDROME RESEARCH TRUST — rett syndrome research
Largest: $11,040 to RETT SYNDROME RESEARCH TRUST — research for rett syndrome
Rett Syndrome Research TrustTrumbull, CTCharity · may take applications
4 matching grants · $697,314 · through 2025Largest: $383,228 to RETT SYNDROME GLOBAL REGISTRY CO RSRT — rett research
Largest: $30,000 to RETT SYNDROME RESEARCH TRUST — support and stimulate new research strategies
The Goldman Sachs Charitable Gift FundNew York, NYCharity · may take applications
4 matching grants · $110,000 · through 2024Largest: $34,500 to RETT SYNDROME RESEARCH TRUST INC — medical/scientific research & programs
Largest: $10,000 to RETT SYNDROME RESEARCH TRUST INC — medical treatment and research
Largest: $50,000 to RETT SYNDROME RESEARCH TRUST — general corporate purpose
Girl Power 2 CureFernandina Beach, FLCharity · may take applications
2 matching grants · $70,040 · through 2025Largest: $35,040 to THE RETT SYNDROME RESEARCH TRUST (RSRT) — rett syndrome research
Largest: $30,000 to REFLEX SYMPATHETIC DYSTROPHY SYNDROME ASSOC OF AMERICA — to further donee's exempt purpose
Largest: $25,000 to RETT SYNDROME RESEARCH TRUST — program support
Ipa FoundationLouisville, KYCharity · may take applications
3 matching grants · $70,000 · through 2024Largest: $25,000 to RETT SYNDROME RESEARCH TRU — curative genetic research
Largest: $10,000 to RETT SYNDROME RESEARCH TRUST (RSRT) — unrestricted general
This is one topic and one state. PaperOrbit reads your actual paper and searches on everything in it — then explains why each funder fits.
Start with one paperBroader: Down syndrome funders nationally · all Connecticut-based grantmakers