Funding search · Down syndrome · New York
Who funds Down syndrome work in New York
15 funders have a record of paying for Down syndrome work by New York recipients: 48 grants totaling $2.4M, most recently in 2025 — mostly private foundations, plus grantmaking charities. The largest by matched giving are Dravet Syndrome Foundation ($250,000), International Rett Syndrome Foundation ($277,499) and Freelander Family Charitable Trust ($135,000).
From IRS Form 990-PF and 990 Schedule I filings, 2019–2025. Grants already paid to New York recipients — evidence of what these funders back, not open calls.
Dravet Syndrome FoundationCherry Hill, NJCharity · may take applications
2 matching grants · $250,000 · through 2025Largest: $150,000 to The Research Foundation for the State University of New York — genetic substrates and physiological triggers for autonomic and cardiac abnormalities in dravet syndrome. using cellular and animal models, david auerbach, phd previously demonstra…
International Rett Syndrome FoundationCincinnati, OHCharity · may take applications
3 matching grants · $277,499 · through 2024Largest: $120,000 to The Rockefeller University — rett syndrome research
Largest: $35,000 to VEO-CARDIO-FACIAL SYNDROME INC — unrestricted donation
Largest: $2,000 to NATIONAL MARFAN FOUNDATION — research and treatment of marfan's syndrome
Largest: $2,000 to TOURETTES SYNDROME ASSOCIATION — medical research
Largest: $13,000 to Loeys-Dietz Syndrome Foundation — support the organization's mission.
Pathfinder Village FoundationEdmeston, NYCharity · may take applications
3 matching grants · $411,625 · through 2024Largest: $144,625 to THE KENNEDY WILLIS CENTER ON DOWN SYNDROME INC — support for the kennedy willis center on downsyndrome, inc.
Phelan McDermid Syndrome FoundationOsprey, FLCharity · may take applications
2 matching grants · $120,900 · through 2024Largest: $100,000 to Seaver Autism Center — to fund the further development of the phelan-mcdermid syndrome inventory for psychiatric symptoms (pips) tool, to better support individuals with phelan mcdermid syndrome and thei…
Largest: $7,500 to CUTE SYNDROME FOUNDATION INC — general operating support
Largest: $5,000 to KAT6A FOUNDATION — this 5,000 grant will fund vital research needed to find treatments for children living with kat6a, a rare syndrome resulting from a mutation in the kat6a gene.
Largest: $75,000 to BARTH SYNDROME FOUNDATION — to further their exclusively charitable purposes
Largest: $5,000 to BARTH SYNDROME FOUNDATION — unrestricted gift
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Start with one paperBroader: Down syndrome funders nationally · all New York-based grantmakers