Funding search · Down syndrome · Pennsylvania
Who funds Down syndrome work in Pennsylvania
15 funders have a record of paying for Down syndrome work by Pennsylvania recipients: 57 grants totaling $3.2M, most recently in 2025 — mostly private foundations, plus grantmaking charities. The largest by matched giving are The Cigna Group Foundation ($18,436), Upmc Group ($60,000) and Robert & Joan Dircks Foundation ($40,000).
From IRS Form 990-PF and 990 Schedule I filings, 2019–2025. Grants already paid to Pennsylvania recipients — evidence of what these funders back, not open calls.
Largest: $3,925 to DOWN SYNDROME ASSOCIATION OF CONNECTICUT INC — general operating purpose
Upmc GroupPittsburgh, PACharity · may take applications
4 matching grants · $60,000 · through 2024Largest: $15,000 to DOWN SYNDROME ASSOC OF PITTSBURGH — down syndrome res
Largest: $10,000 to PA TOURETTE SYNDROME — pa tourette syndrome information and consultation services
Dravet Syndrome FoundationCherry Hill, NJCharity · may take applications
3 matching grants · $1.3M · through 2025Largest: $240,000 to Children's Hospital of Pennsylvania — 1. in conjunction with tel aviv university and institut de génétique moléculaire de montpellier - transformational science grant: molecular characterization of the therapeutic effe…
Largest: $5,000 to CHESTER COUNTY DOWN SYNDROME — down syndrome awareness
Star One Credit UnionSunnyvale, CACharity · may take applications
3 matching grants · $45,000 · through 2024Largest: $15,000 to NEPHCURE KIDNEY INTERNATIONAL — non-profit organization with a mission to accelerate research for effective treatments of rare forms of nephrotic syndrome and provide education and support that will improve lives…
Largest: $702,500 to DOWN SYNDROME CENTER OF WESTERN PA — promote ongoing work of charity
Largest: $25,000 to PASQUALE N MASCARO JR - DOWN SYNDROME EVENT — to continue charitable purpose of organization
Largest: $250,000 to Children's Hospital of Philadelphia — for research study on the genetics of pots (postural orthostatic tachycardia syndrome). chop (children's hospital of philadelphia is a 501(c) (3) organization.
Largest: $165,000 to CHILDREN'S HOSPITAL OF PHILADELPHIA — understanding the role of cytokine release syndrome in car t cell therapy for acute myeloid leukemia
Largest: $11,511 to GUILLAIN-BARRE SYNDROME FOUNDATION INTERNATIONAL — contribution distribution
Largest: $7,500 to Nephcure — provide financial support for research and education regarding nephrotic syndrome.
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Start with one paperBroader: Down syndrome funders nationally · all Pennsylvania-based grantmakers