Funding search · Down syndrome · Washington DC
Who funds Down syndrome work in Washington DC
15 funders have a record of paying for Down syndrome work by Washington DC recipients: 29 grants totaling $3.3M, most recently in 2025 — mostly private foundations, plus grantmaking charities. The largest by matched giving are Massachusetts Down Syndrome Congress ($22,500), Aibtikar Foundation ($45,632) and Allen Family Foundation ($20,000).
From IRS Form 990-PF and 990 Schedule I filings, 2019–2025. Grants already paid to Washington DC recipients — evidence of what these funders back, not open calls.
Massachusetts Down Syndrome CongressBurlington, MACharity · may take applications
3 matching grants · $22,500 · through 2024Largest: $11,500 to NATIONAL DOWN SYNDROME SOCIETY — to help support the national organization for down syndrome. also the massachusetts down syndrome congress, inc. (mdsc) sponsors buddy walks with the permission of the national dow…
Largest: $22,816 to National Down Syndrome Society — the payment in 2024 to the national down syndrome society represents half of the total grant. the grant is to fund a study of the organizations 321 go! program. the program is used…
Largest: $5,000 to NATIONAL DOWN SYNDROME SOCIETY — research and support for condition
Largest: $433,000 to NATIONAL DOWN SYNDROME SOCIETY — partnership support
Foundation for Angelman SyndromeAustin, TXCharity · may take applications
2 matching grants · $387,446 · through 2024Largest: $246,600 to CHILDREN'S RESEARCH INSTITUTE — ft2022-003: peak alpha frequency as an eeg biomarker for angelman syndrome
Largest: $10,000 to SUDDEN ARRHYTHMIA DEATH SYNDROMES — promotes and protects the human rights of people with intellectual and developmental disabilities
Community Foundation of New JerseyMorristown, NJCharity · may take applications
2 matching grants · $25,000 · through 2024Largest: $15,000 to NATIONAL DOWN SYNDROME SOCIETY — special needs
Orange County Community FoundationIrvine, CACharity · may take applications
1 matching grant · $1.6M · through 2024Largest: $1.6M to NATIONAL DOWN SYNDROME SOCIETY — human services
Largest: $497,771 to NATIONAL COMMITTEE FOR QUALITY ASSURANCE — to support the implementation of two quality measures to improve the diagnosis of lynch syndrome.
Largest: $2,174 to NATIONAL DOWN SYNDROME SOCIETY — general & unrestricted
Largest: $1,550 to NATIONAL DOWN SYNDROME SOCIETY — matching gift
Largest: $50,000 to National Down Syndrome Society — to support organization's mission
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Start with one paperBroader: Down syndrome funders nationally · all Washington DC-based grantmakers

