Funding search · EIN 131930701 · Bethesda, MD

Cystic Fibrosis Foundation

Name: Cystic Fibrosis Foundation grants, 2022–2024
Creator: PaperOrbit
License: https://www.irs.gov/charities-non-profits/exempt-organization-public-disclosure-and-availability-requirements

A grantmaking public charity (files IRS Form 990, Schedule I). Charities like this often run real grant programs with application cycles.

1,856
grants reported: $549.3M
total given: 2022–2024
filing years: $155,609
median grant

Based on grants this organization reported to the IRS for tax years 2022–2024. This is what they filed, not a complete record of their giving, and recent years may be incomplete because filings lag.

What they fund

research center care clinical study adult training improvement

Funder website ↗Full IRS filings ↗How this is built Report an error

Funding pattern

What this funder pays for, at what size, and how to position adjacent work. Read from their filings, with every number checked against the record.

Where the money goes

Multi-site clinical research studies in cystic fibrosis networks
CF Care Center operating support at accredited academic sites
Therapeutics discovery research at university labs
Clinical Research Centers and network coordinating infrastructure
Clinical care research, quality improvement, and adherence work
Patient assistance funding routed through a single intermediary

Typical grant

Median grant is about $155,000, with the middle half between $75,500 and $284,800. CF Care Center awards cluster in the $440,000 to $680,000 band, therapeutics discovery grants run roughly $400,000 to $2 million, and the largest checks go to network coordinating sites like Seattle Children's, which drew more than $28 million across three 2024 awards. With 1,856 grants to 482 recipients over three years, giving is heavily repeating: most institutions hold several concurrent awards across care, research, and center categories.

Their words

Phrases from their own grant descriptions, worth speaking back to them.

“CLINICAL RESEARCH STUDY”
“THERAPEUTICS DISCOVERY RESEARCH”
“CF CARE CENTER”
“CLINICAL CARE RESEARCH”
“QUALITY IMPROVEMENT”

Positioning adjacent work

Frame adjacent science as THERAPEUTICS DISCOVERY RESEARCH with a defined CF target, not general pulmonary or genetics work.
Ask in the $400,000 to $1.2 million range for lab-based discovery; that is where comparable university awards sit.
Attach to an accredited CF Care Center institution; nearly every recipient already holds care center funding.
Emphasize multi-site feasibility and data coordination if pitching clinical work, mirroring the Seattle Children's and Jaeb Center model.

Worth knowing: This is a disease-specific funder that gives almost entirely to academic medical centers and children's hospitals inside its own CF care and research network, so an unaffiliated organization has essentially no path. A small set of institutions, Seattle Children's, UAB, UNC Chapel Hill, Johns Hopkins, Case Western, and Iowa, absorb a large share of the dollars through stacked awards across multiple categories.

Top recipients

Repeat recipients are the strongest signal of whether a funder has an open door or quietly re-funds the same organizations.

Seattle Children'S Hospital15 grants · $42.0M
Seattle Children'S Hospital8 grants · $28.9M
Healthwell Foundation3 grants · $14.6M
University of North Carolina at Chapel Hill24 grants · $13.8M
University of Alabama at Birmingham27 grants · $12.3M
Johns Hopkins University18 grants · $11.3M
State University of Iowa16 grants · $10.8M
Jaeb Center for Health Research Foundation2 grants · $10.3M
Case Western Reserve University17 grants · $10.0M
University of Alabama at Birmingham13 grants · $8.7M

Giving over time

$173.0M

2022

$186.8M

2023

$189.6M

2024

Grant history

The 100 largest of 1,856 grants.

$12.9M
Seattle Children'S Hospital · 2024
Clinical research study
$10.2M
Seattle Children'S Hospital · 2024
Clinical research center
$8.0M
Seattle Children'S Hospital · Seattle, WA · 2023
Clinical research center
$7.9M
Seattle Children'S Hospital · Seattle, WA · 2023
Clinical research study
$7.6M
Seattle Children'S Hospital · Seattle, WA · 2022
Clinical research center
$7.0M
Jaeb Center for Health Research Foundation · Tampa, FL · 2023
Clinical research study
$6.9M
Jaeb Center for Health Research Foundation · 2024
Clinical research study
$6.4M
Seattle Children'S Hospital · Seattle, WA · 2022
Clinical research study
$6.0M
Healthwell Foundation · Gaithersburg, MD · 2023
Patient assistance
$5.6M
Healthwell Foundation · Gaithersburg, MD · 2022
Patient assistance
$5.6M
Seattle Children'S Hospital · Seattle, WA · 2022
Clinical research
$5.5M
Seattle Children'S Hospital · 2024
Clinical research
$5.0M
Seattle Children'S Hospital · Seattle, WA · 2023
Clinical research
$4.0M
Trustees of Indiana University · 2024
Clinical research study
$3.7M
State University of Iowa · Iowa City, IA · 2022
Therapeutics discovery research
$3.2M
Jaeb Center for Health Research Foundation · Tampa, FL · 2022
Clinical research study
$3.0M
Healthwell Foundation · 2024
Patient Assistance
$3.0M
University of Alabama at Birmingham · 2024
Research
$2.8M
State University of Iowa · Iowa City, IA · 2023
Therapeutics discovery research
$2.8M
University System of New Hampshire · Durham, NH · 2022
Quality improvement
$2.6M
Children'S Hospital Medical Center · Cincinnati, OH · 2022
Clinical care research
$2.4M
Johns Hopkins University · Baltimore, MD · 2023
Adherence
$2.3M
University of North Carolina at Chapel Hill · Chapel Hill, NC · 2022
Research
$2.3M
University of North Carolina at Chapel Hill · Chapel Hill, NC · 2023
Research
$2.2M
Case Western Reserve University · 2024
Research
$2.2M
University of Washington · 2024
Clinical research study
$2.1M
State University of Iowa · 2024
Therapeutics discovery research
$2.0M
Case Western Reserve University · Cleveland, OH · 2022
Research
$2.0M
Case Western Reserve University · 2024
Research center
$2.0M
Case Western Reserve University · Cleveland, OH · 2023
Research
$1.9M
Carnegie Mellon University · Pittsburgh, PA · 2023
Therapeutics discovery research
$1.9M
Case Western Reserve University · Cleveland, OH · 2023
Research center
$1.8M
University of Alabama at Birmingham · Birmingham, AL · 2023
Research
$1.8M
Children'S Hospital Corporation · Boston, MA · 2023
Adherence
$1.7M
Children'S Hospital Corporation · 2024
Adherence
$1.7M
University of Washington · 2024
Clinical research
$1.7M
University of Alabama at Birmingham · 2024
Therapeutics discovery research
$1.6M
University of Pittsburgh · Pittsburgh, PA · 2023
Clinical care research
$1.6M
Emory University · Atlanta, GA · 2023
Therapeutics discovery research
$1.6M
Case Western Reserve University · Cleveland, OH · 2022
Research center
$1.5M
Regents of the University of Michigan · Ann Arbor, MI · 2023
Research
$1.5M
Johns Hopkins University · Baltimore, MD · 2022
Clinical care research
$1.4M
The Trustees of Columbia University in the City of New York · 2024
Therapeutics discovery research
$1.4M
National Jewish Health · Denver, CO · 2022
Clinical research study
$1.3M
University of Washington · Seattle, WA · 2023
Clinical research study
$1.3M
University of Alabama at Birmingham · Birmingham, AL · 2023
Therapeutics discovery research
$1.3M
The Cleveland Clinic Foundation · Cleveland, OH · 2023
Clinical care research
$1.3M
University of Washington · Seattle, WA · 2022
Clinical research
$1.3M
National Jewish Health · Denver, CO · 2023
Clinical research study
$1.3M
Johns Hopkins University · Baltimore, MD · 2022
Adherence
$1.3M
St Louis University · St Louis, MO · 2022
Clinical research study
$1.3M
University of North Carolina at Chapel Hill · 2024
Therapeutics discovery research
$1.2M
Regents of the University of Michigan · Ann Arbor, MI · 2022
Clinical care research
$1.2M
Regents of the University of Michigan · 2024
Research
$1.2M
Duke University · Durham, NC · 2023
Clinical care research
$1.2M
The Cleveland Clinic Foundation · Cleveland, OH · 2022
Clinical care research
$1.2M
The University of Texas Health Science Center at Houston · Houston, TX · 2022
Research
$1.2M
The Trustees of Columbia University in the City of New York · 2024
Research
$1.2M
Johns Hopkins University · 2024
Therapeutics discovery research
$1.2M
National Jewish Health · 2024
Clinical research study
$1.1M
The Trustees of Columbia University in the City of New York · New York, NY · 2023
Therapeutics discovery research
$1.1M
Johns Hopkins University · Baltimore, MD · 2023
Therapeutics discovery research
$1.1M
The Regents of the University of California Los Angeles · 2024
Research
$1.1M
Emory University · Atlanta, GA · 2022
Quality improvement
$1.1M
Trustees of Dartmouth College · Hanover, NH · 2023
Research
$1.1M
Emory University · 2024
Research
$1.1M
University of Alabama at Birmingham · Birmingham, AL · 2022
Research
$1.1M
The Cleveland Clinic Foundation · 2024
Clinical care research
$1.0M
University of North Carolina at Chapel Hill · 2024
Research
$1.0M
The General Hospital Corporation · Boston, MA · 2022
Clinical research study
$1.0M
University of Washington · Seattle, WA · 2022
Clinical research study
$1.0M
Trustees of Dartmouth College · 2024
Research
$1.0M
Children'S Hospital Medical Center · Cincinnati, OH · 2023
Clinical research
$993,137
Johns Hopkins University · 2024
Clinical care research
$992,455
Emory University · Atlanta, GA · 2022
Clinical research study
$990,102
Children'S Hospital Corporation · Boston, MA · 2022
Adherence
$969,087
University of North Carolina at Chapel Hill · 2024
Clinical research center
$966,263
St Louis University · 2024
Clinical research study
$959,498
University of North Carolina at Chapel Hill · Chapel Hill, NC · 2022
Clinical research center
$955,934
State University of Iowa · 2024
Research
$945,824
University of Alabama at Birmingham · Birmingham, AL · 2022
Clinical research study
$939,998
Trustees of Dartmouth College · 2024
Research center
$931,134
Children'S Hospital Corporation · 2024
Clinical research center
$920,072
Duke University · Durham, NC · 2022
Clinical care research
$904,691
National Jewish Health · Denver, CO · 2023
Clinical research center
$902,789
University of Pittsburgh · Pittsburgh, PA · 2023
Clinical research study
$900,000
State University of Iowa · 2024
Research center
$900,000
University of North Carolina at Chapel Hill · 2024
Research center
$900,000
University of Washington · 2024
Research center
$891,775
University of Alabama at Birmingham · Birmingham, AL · 2022
Therapeutics discovery research
$875,850
Johns Hopkins University · 2024
Clinical research study
$868,000
Georgia Tech Research Corporation · Atlanta, GA · 2022
Clinical research study
$865,569
Washington University · 2024
Therapeutics discovery research
$842,029
Emory University · Atlanta, GA · 2023
Clinical research study
$839,989
President and Fellows of Harvard College · Cambridge, MA · 2022
Clinical research study
$838,749
University of Alabama at Birmingham · 2024
Quality improvement
$833,986
The Regents of the University of California San Francisco · San Francisco, CA · 2022
Research
$832,602
State University of Iowa · Iowa City, IA · 2023
Research
$829,337
St Louis University · St Louis, MO · 2023
Clinical research study
$828,443
University of North Carolina at Chapel Hill · Chapel Hill, NC · 2023
Clinical research center

View all 1,856 grants →

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Source: IRS Form 990, Schedule I, as filed by this organization. These are grants already paid. Grants paid directly to individuals are reported to the IRS only as totals, so they do not appear as named lines here.