Funding search · Health
Foundations that fund rare diseases research
15 private foundations with a record of paying for rare diseases, taken from their IRS Form 990-PF filings. These are grants already made — evidence of what a funder backs, not an open call.
Where the money went
Cadasil AssociationEdina, MNCharity · may take applications
3 matching grants · $35,000 · through 2024Largest: $15,000 to UNIVERSITY OF PENNSYLVANIA — rare disease research bike ride
Largest: $11,000 to UNIVERSITY OF NOTRE DAME — rare disease research, scholarships, mental health programs
Largest: $50,000 to ORPHAN DISEASE PATHWAY PROJECT — to further the exempt purpose of the organization.
Dravet Syndrome FoundationCherry Hill, NJCharity · may take applications
2 matching grants · $21,986 · through 2025Largest: $12,617 to Coriell Institute for Medical Research — this project aims to establish a biobank of five unique lines of commercially-available induced pluripotent stem cells (ipscs) from patient blood samples. the cellular reprogrammin…
Hypopara Research FoundationSan Mateo, CACharity · may take applications
2 matching grants · $117,032 · through 2024Largest: $91,765 to UNIVERSITY OF PENNSYLVANIA — hypoparathyroidism orphan disease
Largest: $5,000 to NATIONAL ORGANIZATION FOR RARE — rare disease research
Largest: $754,103 to UNIVERSITY OF PENNSYLVANIA — to support the penn center for orphan disease research and therapy.
Largest: $100,000 to ORPHAN DISEASE PATHWAY PROJECT — support disease research for orphans.
The Orphan Disease Pathway ProjectRocky Hill, CTCharity · may take applications
1 matching grant · $2.1M · through 2022Largest: $2.1M to UNIVERSITY OF PENNSYLVANIA — the penn center for orphan disease
Curefa FoundationPort Washington, WICharity · may take applications
1 matching grant · $10,000 · through 2022Largest: $10,000 to ORPHAN DISEASE PATHWAY PROJECT — medical research
Largest: $70,000 to ORPHAN DISEASE PATHWAY PROJECT — general charitable purposes
Largest: $5,230 to Rare Village Foundation — rare disease research
The Dinan Family FoundationWest Palm Beach, FL
1 matching grant · $50,000 · through 2022Largest: $50,000 to THE ORPHAN DISEASE PATHWAY — orphan support
Largest: $25,000 to ORPHAN DISEASE PATHWAY PROJECT — to fund the recipient's operating budget
Largest: $25,000 to Orphan Disease Pathway Project — to promote the work of the organization
This page is one keyword. PaperOrbit reads your actual paper — population, methods, outcomes — and searches on all of it, then explains why each funder fits.
Start with one paperSource: IRS Form 990-PF, Part XV, filing years 2019–2025. Foundations rarely accept unsolicited applications; the route in is usually a program officer.