Funding search · EIN 260687439 · Trumbull, CT

Rett Syndrome Research Trust

Name: Rett Syndrome Research Trust grants, 2022–2025
Creator: PaperOrbit
License: https://www.irs.gov/charities-non-profits/exempt-organization-public-disclosure-and-availability-requirements

A grantmaking public charity (files IRS Form 990, Schedule I). Charities like this often run real grant programs with application cycles.

71
grants reported: $22.8M
total given: 2022–2025
filing years: $119,461
median grant

Based on grants this organization reported to the IRS for tax years 2022–2025. This is what they filed, not a complete record of their giving, and recent years may be incomplete because filings lag.

What they fund

research rett editing mecp allelic consortium duplication measures

Funder website ↗Full IRS filings ↗How this is built Report an error

Funding pattern

What this funder pays for, at what size, and how to position adjacent work. Read from their filings, with every number checked against the record.

4 grants matching “registry” · $697,314

$110,490
Rett Syndrome Global Registry · Trumbull, CT · 2025
Rett research
$103,596
Rett Syndrome Global Registry · Trumbull, CT · 2024
Rett research
$100,000
Rett Syndrome Global Registry Co Rsrt · Trumbull, CT · 2023
Rett research
$383,228
Rett Syndrome Global Registry Co Rsrt · Trumbull, CT · 2022
Rett research

Top recipients

Repeat recipients are the strongest signal of whether a funder has an open door or quietly re-funds the same organizations.

Massachusetts Institute of Technology2 grants · $4.0M
University of Massachusetts Medical School3 grants · $3.0M
Emory University3 grants · $2.0M
University of California Davis4 grants · $1.5M
MIT1 grant · $1.2M
Proqr1 grant · $1.1M
Pre-Clinical Studies1 grant · $1.1M
Profluent1 grant · $1.0M
University of Massachusetts2 grants · $865,823
Viralgen1 grant · $750,000

Giving over time

$3.7M

2022

$9.9M

2023

$3.9M

2024

$5.4M

2025

Grant history

All 71 reported grants, largest first.

$3.7M
Massachusetts Institute of Technology · Cambridge, MA · 2023
Rna editing
$2.3M
University of Massachusetts Medical School · Worcester, MA · 2023
Rett research
$1.3M
Emory University · Atlanta, GA · 2023
Rna editing
$1.2M
MIT · Trumbull, CT · 2024
Rett research
$1.1M
Proqr · Trumbull, CT · 2023
Rett research
$1.1M
Pre-Clinical Studies · Trumbull, CT · 2025
Rett research
$1.0M
Profluent · Trumbull, CT · 2025
Rett research
$781,032
University of Massachusetts · Trumbull, CT · 2024
Rett research
$750,000
Viralgen · Trumbull, CT · 2025
Rett research
$607,197
University of Massachusetts Medical School · Worcester, MA · 2022
Rett research
$500,000
California Institute of Technologies · Pasadena, CA · 2023
Rett research
$474,894
University of California Davis · Trumbull, CT · 2025
Rna editing
$424,881
Emory University · Trumbull, CT · 2024
Rett research
$419,317
Jackson Labs · Trumbull, CT · 2025
Rett research
$390,506
University of California Davis · Davis, CA · 2023
Rna editing
$383,228
Rett Syndrome Global Registry Co Rsrt · Trumbull, CT · 2022
Rett research
$360,624
University of California Davis · Davis, CA · 2022
Rna editing
$350,000
4basebio · Trumbull, CT · 2025
Rett research
$306,168
Massachusetts Institute of Technology · Cambridge, MA · 2022
Rna editing
$300,000
Shape Therapeutics · Trumbull, CT · 2025
Rett research
$283,945
Emory University · Atlanta, GA · 2022
Rett research
$250,000
California Institute of Technologies · Trumbull, CT · 2024
Rett research
$243,402
University of California Davis · Trumbull, CT · 2024
Rna editing
$240,000
Evox · Trumbull, CT · 2025
Rett research
$230,217
Ketamine Trial · Trumbull, CT · 2022
Rett research
$213,610
Duke · Trumbull, CT · 2025
Rett research
$193,149
Columbia University · New York, NY · 2022
Rett research
$192,169
Baylor College of Medicine · Houston, TX · 2022
Mecp2 consortium
$182,485
Fred Hutchinson Cancer Research · Seatle, WA · 2022
Rett research
$166,121
Jackson Labs · Trumbull, CT · 2024
Rett research
$163,173
Rett Syndrome Biorepository · Trumbull, CT · 2024
Rna editing
$132,479
Jackson Laboratories · Bar Harbor, ME · 2022
Mouse models allelic series
$130,000
Resplice · Trumbull, CT · 2025
Rett research
$125,000
Texas Childrens Hospital · Houston, TX · 2022
Rett research
$123,762
Rett Syndrome Biorepository · Trumbull, CT · 2025
Rna editing
$119,461
Coriell Institute for Medical Research · Camden, NJ · 2022
Bio repository
$110,490
Rett Syndrome Global Registry · Trumbull, CT · 2025
Rett research
$107,145
Emerald Innovations · Trumbull, CT · 2024
Rett research
$105,826
Coriell Institute for Medical Research · Camden, NJ · 2023
Rett research
$103,596
Rett Syndrome Global Registry · Trumbull, CT · 2024
Rett research
$103,595
Emerald Innovations · Cambridge, MA · 2022
Outcome measures
$101,887
Harvard STEM Cell Institute · Cambridge, MA · 2023
Rett research
$100,000
Rett Syndrome Global Registry Co Rsrt · Trumbull, CT · 2023
Rett research
$97,328
Yale University · Trumbull, CT · 2024
Rett research
$96,578
Columbia University · Trumbull, CT · 2024
Rett research
$90,152
Boston Childrens Hospital · Trumbull, CT · 2024
Rett research
$84,791
University of Massachusetts · Trumbull, CT · 2025
Rett research
$69,088
Boston Children'S Hospital · Boston, MA · 2023
Rett research
$68,060
Jackson Laboratories · Bar Harbor, ME · 2022
Rett research
$67,345
Boston Children'S Hospital · Boston, MA · 2022
Rett research
$62,587
Children'S Hospital of Philadelphia · Philadelphia, PA · 2022
Rett research
$60,000
Ombd Co Rsrt · Trumbull, CT · 2022
Rett research
$54,717
University of Massachusetts Medical School · Worcester, MA · 2022
Rna/dna editing;readthrough therapy; mecp2 duplication syndrome
$50,000
Senti Bio · Trumbull, CT · 2025
Rett research
$50,000
Children'S Hospital of Montefiore · Bronx, NY · 2023
Rett research
$50,000
New York University · Trumbull, CT · 2023
Rett research
$50,000
Harvard University · Boston, MA · 2022
Rett research
$46,755
Fred Hutchinson Cancer Center · Trumbull, CT · 2024
Rett research
$40,123
Children'S Hospital of Montefiore · Trumbull, CT · 2025
Rett research
$36,690
University of Rochester · Rochester, NY · 2022
Rett research
$30,234
New York University · Trumbull, CT · 2024
Rett research
$28,750
Oregon Health and Sciences University Foundation · Portland, OR · 2022
Rna editing
$25,000
Children'S Hospital of Montefiore · Trumbull, CT · 2024
Rett research
$24,100
Sampled · Trumbull, CT · 2023
Rett research
$20,075
Emerald 1 - Vivosense · Trumbull, CT · 2023
Rett research
$15,000
Couragene · Trumbull, CT · 2025
Rett research
$15,000
Couragene · Trumbull, CT · 2024
Rett research
$10,727
Harvard STEM Cell Institute · Cambridge, MA · 2022
Rett research
$8,741
Vivalink · Trumbull, CT · 2025
Rett research
$7,446
Vivalink · Trumbull, CT · 2023
Rett research
$750
Genetic Alliance · Trumbull, CT · 2023
Rett research

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Source: IRS Form 990, Schedule I, as filed by this organization. These are grants already paid. Grants paid directly to individuals are reported to the IRS only as totals, so they do not appear as named lines here.