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Private foundations don’t post open calls, so nobody can search them. We read IRS filings instead — 9.6 million grants from 174,053 foundations and grantmaking charities, searchable by what the money was actually for.

12 funders with a record of paying for “rett”

Where the money went

1.0×
Rett Syndrome Research Trust Inc → University of Massachusetts Medical School: $3.0M across 2 grants, latest 2023Tull Family Foundation → Rett Syndrome Research Trust: $1.4M across 3 grants, latest 2024International Rett Syndrome Foundation → The General Hospital Corporation Dba Massachusetts General Hospital: $300K across 1 grant, latest 2024The V & L Marx Foundation → Rett Syndrome Research Trust: $200K across 4 grants, latest 2025Loyola University of Chicago → Vanderbilt University: $197K across 3 grants, latest 2024The Winston Foundation Inc → Rett Syndrome Research Trust: $115K across 4 grants, latest 2024The Goldman Sachs Charitable Gift Fund → Rett Syndrome Research Trust Inc: $110K across 4 grants, latest 2024Green Family Foundation → Rett Syndrome Research Trust: $100K across 4 grants, latest 2025Girl Power 2 Cure → The Rett Syndrome Research Trust (Rsrt): $70K across 2 grants, latest 2025New Jersey Rett Syndrome Associatio → International Rett Syndrome Foundat: $68K across 3 grants, latest 2024The Jan M and Eugenia Krol Charitable → Rett Syndrome Research Trust Inc: $35K across 4 grants, latest 2024Hugh and Patricia Okane Foundation → Rett Syndrome Research Trust: $29K across 4 grants, latest 2025Rett Syndrome Research Trust Inc → Mit: $1.2M across 1 grant, latest 2024International Rett Syndrome Foundation → University of Wisconsin-Madison: $300K across 1 grant, latest 2024New Jersey Rett Syndrome Associatio → Rett Syndrome Research Trust: $48K across 3 grants, latest 2024Loyola University of Chicago → Vanderbilt University Medical Center: $23K across 3 grants, latest 2024Girl Power 2 Cure → International Rett Syndrome Foundation (Isrf): $17K across 1 grant, latest 2025Hugh and Patricia Okane Foundation → Reverse Rett: $1K across 1 grant, latest 2025Rett Syndrome Research Trust Inc → Proqr: $1.1M across 1 grant, latest 2023International Rett Syndrome Foundation → University of Wisconsin: $300K across 1 grant, latest 2022New Jersey Rett Syndrome Associatio → Montefiore Medical Center-Rett Cent: $32K across 3 grants, latest 2024Rett Syndrome Research Trust Inc → Pre-Clinical Studies: $1.1M across 1 grant, latest 2025Rett Syndrome Research Trust Inc → Profluent: $1.0M across 1 grant, latest 2025Rett Syndrome Research Trust Inc → University of Massachusetts: $866K across 2 grants, latest 2025Rett Syndrome Research Trust Inc → Viralgen: $750K across 1 grant, latest 2025Rett Syndrome Research Trust Inc → California Institute of Technologies: $750K across 2 grants, latest 2024Rett Syndrome Research Trust Inc → Emory University: $709K across 2 grants, latest 2024Rett Syndrome Research Trust Inc → Jackson Labs: $585K across 2 grants, latest 2025Rett Syndrome Research Trust Inc → Rett Syndrome Global Registry Co Rsrt: $483K across 2 grants, latest 2023Rett Syndrome Research Trust Inc → 4basebio: $350K across 1 grant, latest 2025Rett Syndrome Research Trust Inc → Shape Therapeutics: $300K across 1 grant, latest 2025Rett Syndrome Research Trust Inc → Columbia University: $290K across 2 grants, latest 2024International Rett Syndrome Foundation → North Carolina State University: $271K across 2 grants, latest 2024International Rett Syndrome Foundation → The Regents of the University of California Us San Diego: $250K across 2 grants, latest 2023International Rett Syndrome Foundation → Vanderbilt: $242K across 2 grants, latest 2023International Rett Syndrome Foundation → The Rockefeller University: $240K across 2 grants, latest 2024Rett Syndrome Research Trust Inc → Evox: $240K across 1 grant, latest 2025Rett Syndrome Research Trust Inc → Ketamine Trial: $230K across 1 grant, latest 2022Rett Syndrome Research Trust Inc → Rett Syndrome Global Registry: $214K across 2 grants, latest 2025Rett Syndrome Research Trust Inc → Duke: $214K across 1 grant, latest 2025Rett Syndrome Research Trust Inc → Fred Hutchinson Cancer Research: $182K across 1 grant, latest 2022International Rett Syndrome Foundation → Loyola Univeristy Chicago: $150K across 1 grant, latest 2023International Rett Syndrome Foundation → Colorado University: $140K across 1 grant, latest 2022International Rett Syndrome Foundation → The Regents of the University of Colorado: $138K across 1 grant, latest 2024International Rett Syndrome Foundation → The Regents of University of Colorado: $138K across 1 grant, latest 2022International Rett Syndrome Foundation → Vanderbilt University: $138K across 1 grant, latest 2024International Rett Syndrome Foundation → University of Texas Southwestern: $138K across 1 grant, latest 2022International Rett Syndrome Foundation → Whitehead University: $138K across 3 grants, latest 2024International Rett Syndrome Foundation → The University of Texas Southwestern Medical Center: $138K across 1 grant, latest 2024Rett Syndrome Research Trust Inc → Boston Children's Hospital: $136K across 2 grants, latest 2023Rett Syndrome Research Trust Inc → Resplice: $130K across 1 grant, latest 2025International Rett Syndrome Foundation → University of Colorado Denver: $125K across 1 grant, latest 2024Rett Syndrome Research Trust Inc → Texas Childrens Hospital: $125K across 1 grant, latest 2022Rett Syndrome Research Trust Inc → Children's Hospital of Montefiore: $115K across 3 grants, latest 2025Rett Syndrome Research Trust Inc → Harvard Stem Cell Institute: $113K across 2 grants, latest 2023Rett Syndrome Research Trust Inc → Emerald Innovations: $107K across 1 grant, latest 2024Rett Syndrome Research Trust Inc → Coriell Institute for Medical Research: $106K across 1 grant, latest 2023International Rett Syndrome Foundation → The University of North Carolina at Chapel Hill: $100K across 1 grant, latest 2024International Rett Syndrome Foundation → Baylor College of Medicine: $100K across 1 grant, latest 2022International Rett Syndrome Foundation → University of Virginia Rector & Visitors: $100K across 1 grant, latest 2024Rett Syndrome Research Trust Inc → Yale University: $97K across 1 grant, latest 2024Rett Syndrome Research Trust Inc → Boston Childrens Hospital: $90K across 1 grant, latest 2024Rett Syndrome Research Trust Inc → New York University: $80K across 2 grants, latest 2024International Rett Syndrome Foundation → University of California Uc San Diego: $75K across 1 grant, latest 2023Rett Syndrome Research Trust Inc: $15M on this topic. Open the funder.Rett Syndrome Research Trust…$15MInternational Rett Syndrome Foundation: $3.5M on this topic. Open the funder.International Rett Syndrome F…$3.5MTull Family Foundation: $1.4M on this topic. Open the funder.Tull Family Foundation$1.4MLoyola University of Chicago: $220K on this topic. Open the funder.Loyola University of Chicago$220KThe V & L Marx Foundation: $200K on this topic. Open the funder.The V & L Marx Foundation$200KNew Jersey Rett Syndrome Associatio: $148K on this topic. Open the funder.New Jersey Rett Syndrome Asso…$148KThe Winston Foundation Inc: $115K on this topic. Open the funder.The Winston Foundation Inc$115KThe Goldman Sachs Charitable Gift Fund: $110K on this topic. Open the funder.The Goldman Sachs Charitable…$110KGreen Family Foundation: $100K on this topic. Open the funder.Green Family Foundation$100KGirl Power 2 Cure: $87K on this topic. Open the funder.Girl Power 2 Cure$87KThe Jan M and Eugenia Krol Charitable: $35K on this topic. Open the funder.The Jan M and Eugenia Krol Ch…$35KHugh and Patricia Okane Foundation: $30K on this topic. Open the funder.Hugh and Patricia Okane Found…$30KUniversity of Massachusetts Medical School: received $3.0M on this topicUniversity of Massachusetts Med…$3.0MRett Syndrome Research Trust: received $1.9M on this topicRett Syndrome Research Trust$1.9MMit: received $1.2M on this topicMit$1.2MProqr: received $1.1M on this topicProqr$1.1MPre-Clinical Studies: received $1.1M on this topicPre-Clinical Studies$1.1MProfluent: received $1.0M on this topicProfluent$1.0MUniversity of Massachusetts: received $866K on this topicUniversity of Massachusetts$866KViralgen: received $750K on this topicViralgen$750KCalifornia Institute of Technologies: received $750K on this topicCalifornia Institute of Technol…$750KEmory University: received $709K on this topicEmory University$709KJackson Labs: received $585K on this topicJackson Labs$585KRett Syndrome Global Registry Co Rsrt: received $483K on this topicRett Syndrome Global Registry C…$483K4basebio: received $350K on this topic4basebio$350KThe General Hospital Corporation Dba Massachusetts General Hospital: received $300K on this topicThe General Hospital Corporatio…$300KUniversity of Wisconsin-Madison: received $300K on this topicUniversity of Wisconsin-Madison$300KUniversity of Wisconsin: received $300K on this topicUniversity of Wisconsin$300KShape Therapeutics: received $300K on this topicShape Therapeutics$300KColumbia University: received $290K on this topicColumbia University$290KNorth Carolina State University: received $271K on this topicNorth Carolina State University$271KThe Regents of the University of California Us San Diego: received $250K on this topicThe Regents of the University o…$250KVanderbilt: received $242K on this topicVanderbilt$242KThe Rockefeller University: received $240K on this topicThe Rockefeller University$240KEvox: received $240K on this topicEvox$240KKetamine Trial: received $230K on this topicKetamine Trial$230KRett Syndrome Global Registry: received $214K on this topicRett Syndrome Global Registry$214KDuke: received $214K on this topicDuke$214KVanderbilt University: received $197K on this topicVanderbilt University$197KFred Hutchinson Cancer Research: received $182K on this topicFred Hutchinson Cancer Research$182KLoyola Univeristy Chicago: received $150K on this topicLoyola Univeristy Chicago$150KRett Syndrome Research Trust Inc: received $145K on this topicRett Syndrome Research Trust Inc$145KColorado University: received $140K on this topicColorado University$140KThe Regents of the University of Colorado: received $138K on this topicThe Regents of the University o…$138KThe Regents of University of Colorado: received $138K on this topicThe Regents of University of Co…$138KVanderbilt University: received $138K on this topicVanderbilt University$138KUniversity of Texas Southwestern: received $138K on this topicUniversity of Texas Southwestern$138KWhitehead University: received $138K on this topicWhitehead University$138KThe University of Texas Southwestern Medical Center: received $138K on this topicThe University of Texas Southwe…$138KBoston Children's Hospital: received $136K on this topicBoston Children's Hospital$136KResplice: received $130K on this topicResplice$130KUniversity of Colorado Denver: received $125K on this topicUniversity of Colorado Denver$125KTexas Childrens Hospital: received $125K on this topicTexas Childrens Hospital$125KChildren's Hospital of Montefiore: received $115K on this topicChildren's Hospital of Montefio…$115KHarvard Stem Cell Institute: received $113K on this topicHarvard Stem Cell Institute$113KEmerald Innovations: received $107K on this topicEmerald Innovations$107KCoriell Institute for Medical Research: received $106K on this topicCoriell Institute for Medical R…$106KThe University of North Carolina at Chapel Hill: received $100K on this topicThe University of North Carolin…$100KBaylor College of Medicine: received $100K on this topicBaylor College of Medicine$100KUniversity of Virginia Rector & Visitors: received $100K on this topicUniversity of Virginia Rector &…$100KYale University: received $97K on this topicYale University$97KBoston Childrens Hospital: received $90K on this topicBoston Childrens Hospital$90KNew York University: received $80K on this topicNew York University$80KUniversity of California Uc San Diego: received $75K on this topicUniversity of California Uc San…$75KThe Rett Syndrome Research Trust (Rsrt): received $70K on this topicThe Rett Syndrome Research Trus…$70KInternational Rett Syndrome Foundat: received $68K on this topicInternational Rett Syndrome Fou…$68KMontefiore Medical Center-Rett Cent: received $32K on this topicMontefiore Medical Center-Rett…$32KVanderbilt University Medical Center: received $23K on this topicVanderbilt University Medical C…$23KInternational Rett Syndrome Foundation (Isrf): received $17K on this topicInternational Rett Syndrome Fou…$17KReverse Rett: received $1K on this topicReverse Rett$1K
12 funders, 58 recipients, grants matching “rett” only. Ribbon width is proportional to the total given; each funder has its own colour (smaller funders in gray). Hover a name to isolate its flows, click a funder to open it. Drag to move around; zoom with the buttons, a double-click, or the wheel after clicking the map.

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Source: IRS Form 990-PF Part XV and Form 990 Schedule I, tax years 2019–2025. These are grants already paid, a record of what an organization funds rather than an open call. Private foundations rarely accept unsolicited applications and the route in is usually a program officer; grantmaking charities and associations more often run real application cycles, so check their website. How this data is built, and its limits →