Funding search · EIN 953018799 · Silver Spring, MD

National Tuberous Sclerosis

A grantmaking public charity (files IRS Form 990, Schedule I). Charities like this often run real grant programs with application cycles.

70
grants reported
$3.9M
total given
2022–2025
filing years
$56,250
median grant

Based on grants this organization reported to the IRS for tax years 20222025. This is what they filed, not a complete record of their giving, and recent years may be incomplete because filings lag.

What they fund

researchlodgingtravel

Funder website ↗Full IRS filings ↗How this is builtReport an error

Funding pattern

What this funder pays for, at what size, and how to position adjacent work. Read from their filings, with every number checked against the record.

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Top recipients

Repeat recipients are the strongest signal of whether a funder has an open door or quietly re-funds the same organizations.

  • National Organization for Rare Disorders6 grants · $725,000
  • Brigham & Women'S Hospital4 grants · $472,284
  • Boston Children'S Hospital6 grants · $412,084
  • University of Texas Southwestern Medical Center4 grants · $262,500
  • University of Maryland Baltimore4 grants · $262,500
  • Columbia University in the City of New York5 grants · $243,750
  • University of Alabama Birmingham2 grants · $183,298
  • University of Texas Dallas4 grants · $168,750
  • University of California Irvine4 grants · $168,750
  • Baylor College of Medicine4 grants · $168,750

Giving over time

$1.3M
2022
$1.3M
2023
$594,369
2024
$701,695
2025

Grant history

All 70 reported grants, largest first.

  • $179,892

    Brigham & Women'S Hospital · Boston, MA · 2022

    Research grant

  • $179,892

    Brigham & Women'S Hospital · Boston, MA · 2022

    Research grant

  • $175,000

    National Organization for Rare Disorders · Woburn, MA · 2024

    Tsc travel and lodging assistance program

  • $150,000

    National Organization for Rare Disorders · Woburn, MA · 2025

    Tsc travel and lodging assistance program

  • $125,000

    National Organization for Rare Disorders · Woburn, MA · 2023

    Tsc travel and lodging assistance program

  • $125,000

    National Organization for Rare Disorders · Woburn, MA · 2023

    Tsc travel and lodging assistance program

  • $100,579

    Boston Children'S Hospital · Boston, MA · 2025

    Research grant

  • $91,649

    University of Alabama Birmingham · Birmingham, AL · 2023

    Research grant

  • $91,649

    University of Alabama Birmingham · Birmingham, AL · 2023

    Research grant

  • $81,869

    Boston Children'S Hospital · Boston, MA · 2024

    Research grant

  • $75,000

    Emory University · Atlanta, GA · 2025

    Research grant

  • $75,000

    Northwestern University · Evanston, IL · 2025

    Research grant

  • $75,000

    University of Massachusetts · Worcester, MA · 2025

    Research grant

  • $75,000

    Baylor College of Medicine · Dallas, TX · 2024

    Research grant

  • $75,000

    University of California Irvine · Irvine, CA · 2024

    Research grant

  • $75,000

    University of Texas Dallas · Richardson, TX · 2024

    Research grant

  • $75,000

    Columbia University in the City of New York · New York, NY · 2023

    Research grant

  • $75,000

    Columbia University in the City of New York · New York, NY · 2023

    Research grant

  • $75,000

    National Organization for Rare Disorders · Woburn, MA · 2022

    Tsc travel and lodging assistance program

  • $75,000

    National Organization for Rare Disorders · Woburn, MA · 2022

    Tsc travel and lodging assistance program

  • $75,000

    University of Maryland Baltimore · Baltimore, MD · 2022

    Research grant

  • $75,000

    University of Maryland Baltimore · Baltimore, MD · 2022

    Research grant

  • $75,000

    University of Texas Southwestern Medical Center · Dallas, TX · 2022

    Research grant

  • $75,000

    University of Texas Southwestern Medical Center · Dallas, TX · 2022

    Research grant

  • $75,000

    University of Washington · Seattle, WA · 2022

    Research grant

  • $75,000

    University of Washington · Seattle, WA · 2022

    Research grant

  • $57,409

    Boston Children'S Hospital · Boston, MA · 2023

    Research grant

  • $57,409

    Boston Children'S Hospital · Boston, MA · 2023

    Research grant

  • $57,409

    Boston Children'S Hospital · Boston, MA · 2022

    Research grant

  • $57,409

    Boston Children'S Hospital · Boston, MA · 2022

    Research grant

  • $56,250

    Baylor College of Medicine · Dallas, TX · 2025

    Research grant

  • $56,250

    University of California Irvine · Irvine, CA · 2025

    Research grant

  • $56,250

    University of Texas Dallas · Richardson, TX · 2025

    Research grant

  • $56,250

    Columbia University in the City of New York · New York, NY · 2024

    Research grant

  • $56,250

    Brigham & Women'S Hospital · Boston, MA · 2023

    Research grant

  • $56,250

    Brigham & Women'S Hospital · Boston, MA · 2023

    Research grant

  • $56,250

    University of Maryland Baltimore · Baltimore, MD · 2023

    Research grant

  • $56,250

    University of Maryland Baltimore · Baltimore, MD · 2023

    Research grant

  • $56,250

    University of Texas Southwestern Medical Center · Dallas, TX · 2023

    Research grant

  • $56,250

    University of Texas Southwestern Medical Center · Dallas, TX · 2023

    Research grant

  • $31,986

    Brown University · Providence, RI · 2022

    Research grant

  • $31,986

    Brown University · Providence, RI · 2022

    Research grant

  • $20,000

    University of California · Los Angeles, CA · 2023

    Research grant

  • $20,000

    University of California · Los Angeles, CA · 2023

    Research grant

  • $20,000

    University of New England · Biddeford, ME · 2023

    Research grant

  • $20,000

    University of New England · Biddeford, ME · 2023

    Research grant

  • $20,000

    Nationwide Children'S Hospital · Detroit, MI · 2022

    Research grant

  • $20,000

    Nationwide Children'S Hospital · Detroit, MI · 2022

    Research grant

  • $19,866

    Clemson University · Atlanta, GA · 2025

    Research grant

  • $18,750

    Cincinnati of Children'S Hospital · Cincinnati, OH · 2025

    Research grant

  • $18,750

    The Regents of the University of California · Los Angeles, CA · 2025

    Research grant

  • $18,750

    Emory University · Atlanta, GA · 2024

    Research grant

  • $18,750

    Northwestern University · Evanston, IL · 2024

    Research grant

  • $18,750

    University of Massachusetts · Worcester, MA · 2024

    Research grant

  • $18,750

    Baylor College of Medicine · Dallas, TX · 2023

    Research grant

  • $18,750

    Baylor College of Medicine · Dallas, TX · 2023

    Research grant

  • $18,750

    University of California Irvine · Irvine, CA · 2023

    Research grant

  • $18,750

    University of California Irvine · Irvine, CA · 2023

    Research grant

  • $18,750

    University of Texas Dallas · Richardson, TX · 2023

    Research grant

  • $18,750

    University of Texas Dallas · Richardson, TX · 2023

    Research grant

  • $18,750

    University of Virginia · Charlottesville, VA · 2023

    Research grant

  • $18,750

    University of Virginia · Charlottesville, VA · 2023

    Research grant

  • $18,750

    Columbia University in the City of New York · New York, NY · 2022

    Research grant

  • $18,750

    Columbia University in the City of New York · New York, NY · 2022

    Research grant

  • $18,750

    University of Virginia · Charlottesville, VA · 2022

    Research grant

  • $18,750

    University of Virginia · Charlottesville, VA · 2022

    Research grant

  • $17,624

    Clemson University · Clemson, SC · 2022

    Research grant

  • $17,624

    Clemson University · Clemson, SC · 2022

    Research grant

  • $13,200

    University of California Los Angeles Campus · Los Angeles, CA · 2022

    Research grant

  • $13,200

    University of California Los Angeles Campus · Los Angeles, CA · 2022

    Research grant

Who else funds this kind of work

Same state

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Source: IRS Form 990, Schedule I, as filed by this organization. These are grants already paid. Grants paid directly to individuals are reported to the IRS only as totals, so they do not appear as named lines here.