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Private foundations don’t post open calls, so nobody can search them. We read IRS filings instead — 9.6 million grants from 174,053 foundations and grantmaking charities, searchable by what the money was actually for.

12 funders with a record of paying for “duchenne”

Where the money went

1.0×
The Parent Project for Muscular → Cincinnati Children's Hospital Mc: $641K across 1 grant, latest 2022Foundation to Eradicate Duchenne Inc → Children's National Medical Center: $330K across 2 grants, latest 2023C3 Legacy Foundation → Cure Duchenne: $200K across 4 grants, latest 2025Bernard F & Alva B Gimbel Foundation → Boston Children's Hospital: $195K across 6 grants, latest 2024Fighting Duchenne Foundation → Texas A&m Division of Research: $111K across 1 grant, latest 2022Sodhani Foundation → Indus: $109K across 2 grants, latest 2023The Council of Insurance Agents and → Foundation to Eradicate Duchenne: $100K across 2 grants, latest 2024Frome Family Foundation → Cure Duchenne: $60K across 3 grants, latest 2024Bilek Charitable Foundation → Cure Duchenne: $33K across 2 grants, latest 2025Muller Family Foundation → Center for Duchenne Muscular Dystrophy at Ucla: $20K across 1 grant, latest 2023William Penn Bank Community Foundation → Ryan's Quest Inc: $20K across 3 grants, latest 2023Hylant Family Foundation Inc → Foundation to Eradicate Duchenne Inc: $4K across 2 grants, latest 2024The Parent Project for Muscular → Cincinnati Children's Hospital: $589K across 1 grant, latest 2023Foundation to Eradicate Duchenne Inc → Research Foundation for Suny at Binghamton University: $234K across 2 grants, latest 2023Fighting Duchenne Foundation → Vanderbilt Children's Hospital: $63K across 1 grant, latest 2023The Council of Insurance Agents and → Foundation to Eradicate Duchenne Inc: $50K across 1 grant, latest 2022Muller Family Foundation → Duchenne Muscular Dystrophy Research Fund: $20K across 1 grant, latest 2024Bernard F & Alva B Gimbel Foundation → Rutgers University Foundation: $15K across 3 grants, latest 2024The Parent Project for Muscular → Critical Path: $200K across 2 grants, latest 2024Foundation to Eradicate Duchenne Inc → Parent Project Muscular Dystrophy: $175K across 4 grants, latest 2025Fighting Duchenne Foundation → Texas A & M: $42K across 1 grant, latest 2024Bernard F & Alva B Gimbel Foundation → Cold Spring Harbor Laboratory: $15K across 3 grants, latest 2024The Parent Project for Muscular → The Nemours Foundation: $180K across 3 grants, latest 2024Foundation to Eradicate Duchenne Inc → Research Foundation for Suny for the State Univeristy of New York: $162K across 1 grant, latest 2024The Parent Project for Muscular → Team Joseph: $145K across 1 grant, latest 2022Foundation to Eradicate Duchenne Inc → Children's Research Institute: $111K across 2 grants, latest 2025Foundation to Eradicate Duchenne Inc → Children's National Heart Center: $100K across 1 grant, latest 2025The Parent Project for Muscular → Critical Path Institute: $100K across 1 grant, latest 2022Foundation to Eradicate Duchenne Inc → Binghamton University: $87K across 1 grant, latest 2025Foundation to Eradicate Duchenne Inc → Virginia Commonwealth University: $75K across 1 grant, latest 2024The Parent Project for Muscular → Really Useful Robots: $66K across 2 grants, latest 2023The Parent Project for Muscular → Trustees of the University of Pennsylvania: $50K across 1 grant, latest 2022Foundation to Eradicate Duchenne Inc → Osteogenesis Imperfecta Foundation: $50K across 2 grants, latest 2025Foundation to Eradicate Duchenne Inc → Reveragen Biopharma Inc: $48K across 1 grant, latest 2022Foundation to Eradicate Duchenne Inc → Duchenne Research: $39K across 1 grant, latest 2024The Parent Project for Muscular → Nationwide Childrens Hospital: $35K across 1 grant, latest 2022The Parent Project for Muscular → Children's Research Institute: $33K across 1 grant, latest 2023Foundation to Eradicate Duchenne Inc → University of Pittsburgh: $32K across 2 grants, latest 2025The Parent Project for Muscular → Arkansas Children's Hospital: $31K across 1 grant, latest 2022The Parent Project for Muscular → Duke University: $30K across 1 grant, latest 2022Foundation to Eradicate Duchenne Inc → Old Dominion University: $27K across 1 grant, latest 2025The Parent Project for Muscular → Regents of the University of California-La: $20K across 1 grant, latest 2022Foundation to Eradicate Duchenne Inc → Trinds LLC: $12K across 1 grant, latest 2022The Parent Project for Muscular → Lucile Packard Foundation for Children's Health: $10K across 1 grant, latest 2022The Parent Project for Muscular → Kennedy Krieger Institute: $10K across 1 grant, latest 2022Bernard F & Alva B Gimbel Foundation → Nationwide Children's Hospital Foundation: $8K across 3 grants, latest 2024Bernard F & Alva B Gimbel Foundation → Muscular Dystrophy Association: $8K across 3 grants, latest 2024The Parent Project for Muscular: $2.1M on this topic. Open the funder.The Parent Project for Muscul…$2.1MFoundation to Eradicate Duchenne Inc: $1.5M on this topic. Open the funder.Foundation to Eradicate Duche…$1.5MBernard F & Alva B Gimbel Foundation: $240K on this topic. Open the funder.Bernard F & Alva B Gimbel Fou…$240KFighting Duchenne Foundation: $215K on this topic. Open the funder.Fighting Duchenne Foundation$215KC3 Legacy Foundation: $200K on this topic. Open the funder.C3 Legacy Foundation$200KThe Council of Insurance Agents and: $150K on this topic. Open the funder.The Council of Insurance Agen…$150KSodhani Foundation: $109K on this topic. Open the funder.Sodhani Foundation$109KFrome Family Foundation: $60K on this topic. Open the funder.Frome Family Foundation$60KMuller Family Foundation: $40K on this topic. Open the funder.Muller Family Foundation$40KBilek Charitable Foundation: $33K on this topic. Open the funder.Bilek Charitable Foundation$33KWilliam Penn Bank Community Foundation: $20K on this topic. Open the funder.William Penn Bank Community F…$20KHylant Family Foundation Inc: $4K on this topic. Open the funder.Hylant Family Foundation Inc$4KCincinnati Children's Hospital Mc: received $641K on this topicCincinnati Children's Hospital…$641KCincinnati Children's Hospital: received $589K on this topicCincinnati Children's Hospital$589KChildren's National Medical Center: received $330K on this topicChildren's National Medical Cen…$330KResearch Foundation for Suny at Binghamton University: received $234K on this topicResearch Foundation for Suny at…$234KCure Duchenne: received $233K on this topicCure Duchenne$233KCritical Path: received $200K on this topicCritical Path$200KBoston Children's Hospital: received $195K on this topicBoston Children's Hospital$195KThe Nemours Foundation: received $180K on this topicThe Nemours Foundation$180KParent Project Muscular Dystrophy: received $175K on this topicParent Project Muscular Dystrop…$175KResearch Foundation for Suny for the State Univeristy of New York: received $162K on this topicResearch Foundation for Suny fo…$162KTeam Joseph: received $145K on this topicTeam Joseph$145KChildren's Research Institute: received $144K on this topicChildren's Research Institute$144KTexas A&m Division of Research: received $111K on this topicTexas A&m Division of Research$111KIndus: received $109K on this topicIndus$109KFoundation to Eradicate Duchenne: received $100K on this topicFoundation to Eradicate Duchenne$100KChildren's National Heart Center: received $100K on this topicChildren's National Heart Center$100KCritical Path Institute: received $100K on this topicCritical Path Institute$100KBinghamton University: received $87K on this topicBinghamton University$87KVirginia Commonwealth University: received $75K on this topicVirginia Commonwealth University$75KReally Useful Robots: received $66K on this topicReally Useful Robots$66KVanderbilt Children's Hospital: received $63K on this topicVanderbilt Children's Hospital$63KCure Duchenne: received $60K on this topicCure Duchenne$60KFoundation to Eradicate Duchenne Inc: received $54K on this topicFoundation to Eradicate Duchenn…$54KTrustees of the University of Pennsylvania: received $50K on this topicTrustees of the University of P…$50KOsteogenesis Imperfecta Foundation: received $50K on this topicOsteogenesis Imperfecta Foundat…$50KReveragen Biopharma Inc: received $48K on this topicReveragen Biopharma Inc$48KTexas A & M: received $42K on this topicTexas A & M$42KDuchenne Research: received $39K on this topicDuchenne Research$39KNationwide Childrens Hospital: received $35K on this topicNationwide Childrens Hospital$35KUniversity of Pittsburgh: received $32K on this topicUniversity of Pittsburgh$32KArkansas Children's Hospital: received $31K on this topicArkansas Children's Hospital$31KDuke University: received $30K on this topicDuke University$30KOld Dominion University: received $27K on this topicOld Dominion University$27KCenter for Duchenne Muscular Dystrophy at Ucla: received $20K on this topicCenter for Duchenne Muscular Dy…$20KRyan's Quest Inc: received $20K on this topicRyan's Quest Inc$20KDuchenne Muscular Dystrophy Research Fund: received $20K on this topicDuchenne Muscular Dystrophy Res…$20KRegents of the University of California-La: received $20K on this topicRegents of the University of Ca…$20KRutgers University Foundation: received $15K on this topicRutgers University Foundation$15KCold Spring Harbor Laboratory: received $15K on this topicCold Spring Harbor Laboratory$15KTrinds LLC: received $12K on this topicTrinds LLC$12KLucile Packard Foundation for Children's Health: received $10K on this topicLucile Packard Foundation for C…$10KKennedy Krieger Institute: received $10K on this topicKennedy Krieger Institute$10KNationwide Children's Hospital Foundation: received $8K on this topicNationwide Children's Hospital…$8KMuscular Dystrophy Association: received $8K on this topicMuscular Dystrophy Association$8K
12 funders, 44 recipients, grants matching “duchenne” only. Ribbon width is proportional to the total given; each funder has its own colour (smaller funders in gray). Hover a name to isolate its flows, click a funder to open it. Drag to move around; zoom with the buttons, a double-click, or the wheel after clicking the map.

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Source: IRS Form 990-PF Part XV and Form 990 Schedule I, tax years 2019–2025. These are grants already paid, a record of what an organization funds rather than an open call. Private foundations rarely accept unsolicited applications and the route in is usually a program officer; grantmaking charities and associations more often run real application cycles, so check their website. How this data is built, and its limits →