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Private foundations don’t post open calls, so nobody can search them. We read IRS filings instead — 9.6 million grants from 174,053 foundations and grantmaking charities, searchable by what the money was actually for.

12 funders with a record of paying for “dystrophy”

Where the money went

1.0×
Atrium Health Foundation → The Charlotte-Mecklenburg Hospital Auth Dba Atrium Health: $2.1M across 2 grants, latest 2024The Albertsons Companies Foundation → Muscular Dystrophy Association: $1.8M across 12 grants, latest 2024The Marshall Heritage Foundation → Muscular Dystrophy Association: $1.5M across 4 grants, latest 2024The Wilbur C and Betty Lea → Muscular Dystrophy Association: $400K across 4 grants, latest 2025Foundation to Eradicate Duchenne Inc → Children's National Medical Center: $330K across 2 grants, latest 2023Bernard F & Alva B Gimbel Foundation → Boston Children's Hospital: $195K across 6 grants, latest 2024Cure Lgmd2i Foundation → Kinea Bio: $100K across 1 grant, latest 2022The Child Health Foundation → University of Rochester: $94K across 2 grants, latest 2025Landmark Charities → The Westview School: $75K across 2 grants, latest 2023Enterprise Holdings Foundation → Muscular Dystrophy Association: $74K across 16 grants, latest 2023Martha Washington Straus-Harry H Straus → Muscular Dystrophy Foundation: $66K across 4 grants, latest 2025Worcester Fire Fighters Association → Muscular Dystrophy Association Inc: $44K across 3 grants, latest 2024Atrium Health Foundation → Atrium Health: $1.1M across 1 grant, latest 2022The Albertsons Companies Foundation → Muscular Dystrophy Association Inc: $350K across 1 grant, latest 2021Foundation to Eradicate Duchenne Inc → Research Foundation for Suny at Binghamton University: $234K across 2 grants, latest 2023Cure Lgmd2i Foundation → Myogenica: $100K across 1 grant, latest 2022Landmark Charities → Blessed Be Hope for Three Inc: $65K across 3 grants, latest 2024The Child Health Foundation → University of Rochester: $46K across 2 grants, latest 2023Bernard F & Alva B Gimbel Foundation → Rutgers University Foundation: $15K across 3 grants, latest 2024Enterprise Holdings Foundation → Muscular Dystrophy Association of Wisconsin: $3K across 1 grant, latest 2020Foundation to Eradicate Duchenne Inc → Parent Project Muscular Dystrophy: $175K across 4 grants, latest 2025Landmark Charities → The University of Texas Medical School at Houston: $60K across 1 grant, latest 2022Cure Lgmd2i Foundation → The Speak Foundation: $25K across 2 grants, latest 2023Bernard F & Alva B Gimbel Foundation → Cold Spring Harbor Laboratory: $15K across 3 grants, latest 2024Foundation to Eradicate Duchenne Inc → Research Foundation for Suny for the State Univeristy of New York: $162K across 1 grant, latest 2024Foundation to Eradicate Duchenne Inc → Children's Research Institute: $111K across 2 grants, latest 2025Foundation to Eradicate Duchenne Inc → Children's National Heart Center: $100K across 1 grant, latest 2025Foundation to Eradicate Duchenne Inc → Binghamton University: $87K across 1 grant, latest 2025Foundation to Eradicate Duchenne Inc → Virginia Commonwealth University: $75K across 1 grant, latest 2024Foundation to Eradicate Duchenne Inc → Osteogenesis Imperfecta Foundation: $50K across 2 grants, latest 2025Foundation to Eradicate Duchenne Inc → Reveragen Biopharma Inc: $48K across 1 grant, latest 2022Landmark Charities → Muscular Dystrophy Association: $40K across 1 grant, latest 2022Foundation to Eradicate Duchenne Inc → Duchenne Research: $39K across 1 grant, latest 2024Foundation to Eradicate Duchenne Inc → University of Pittsburgh: $32K across 2 grants, latest 2025Landmark Charities → Autism Speaks: $30K across 2 grants, latest 2023Foundation to Eradicate Duchenne Inc → Old Dominion University: $27K across 1 grant, latest 2025Cure Lgmd2i Foundation → University of Iowa: $20K across 2 grants, latest 2023Foundation to Eradicate Duchenne Inc → Trinds LLC: $12K across 1 grant, latest 2022Bernard F & Alva B Gimbel Foundation → Nationwide Children's Hospital Foundation: $8K across 3 grants, latest 2024Bernard F & Alva B Gimbel Foundation → Muscular Dystrophy Association: $8K across 3 grants, latest 2024Atrium Health Foundation: $3.2M on this topic. Open the funder.Atrium Health Foundation$3.2MThe Albertsons Companies Foundation: $2.2M on this topic. Open the funder.The Albertsons Companies Foun…$2.2MThe Marshall Heritage Foundation: $1.5M on this topic. Open the funder.The Marshall Heritage Foundat…$1.5MFoundation to Eradicate Duchenne Inc: $1.5M on this topic. Open the funder.Foundation to Eradicate Duche…$1.5MThe Wilbur C and Betty Lea: $400K on this topic. Open the funder.The Wilbur C and Betty Lea$400KLandmark Charities: $270K on this topic. Open the funder.Landmark Charities$270KCure Lgmd2i Foundation: $245K on this topic. Open the funder.Cure Lgmd2i Foundation$245KBernard F & Alva B Gimbel Foundation: $240K on this topic. Open the funder.Bernard F & Alva B Gimbel Fou…$240KThe Child Health Foundation: $140K on this topic. Open the funder.The Child Health Foundation$140KEnterprise Holdings Foundation: $77K on this topic. Open the funder.Enterprise Holdings Foundation$77KMartha Washington Straus-Harry H Straus: $66K on this topic. Open the funder.Martha Washington Straus-Harr…$66KWorcester Fire Fighters Association: $44K on this topic. Open the funder.Worcester Fire Fighters Assoc…$44KMuscular Dystrophy Association: received $2.3M on this topicMuscular Dystrophy Association$2.3MThe Charlotte-Mecklenburg Hospital Auth Dba Atrium Health: received $2.1M on this topicThe Charlotte-Mecklenburg Hospi…$2.1MMuscular Dystrophy Association: received $1.5M on this topicMuscular Dystrophy Association$1.5MAtrium Health: received $1.1M on this topicAtrium Health$1.1MMuscular Dystrophy Association Inc: received $394K on this topicMuscular Dystrophy Association…$394KChildren's National Medical Center: received $330K on this topicChildren's National Medical Cen…$330KResearch Foundation for Suny at Binghamton University: received $234K on this topicResearch Foundation for Suny at…$234KBoston Children's Hospital: received $195K on this topicBoston Children's Hospital$195KParent Project Muscular Dystrophy: received $175K on this topicParent Project Muscular Dystrop…$175KResearch Foundation for Suny for the State Univeristy of New York: received $162K on this topicResearch Foundation for Suny fo…$162KChildren's Research Institute: received $111K on this topicChildren's Research Institute$111KKinea Bio: received $100K on this topicKinea Bio$100KMyogenica: received $100K on this topicMyogenica$100KChildren's National Heart Center: received $100K on this topicChildren's National Heart Center$100KUniversity of Rochester: received $94K on this topicUniversity of Rochester$94KBinghamton University: received $87K on this topicBinghamton University$87KThe Westview School: received $75K on this topicThe Westview School$75KVirginia Commonwealth University: received $75K on this topicVirginia Commonwealth University$75KMuscular Dystrophy Foundation: received $66K on this topicMuscular Dystrophy Foundation$66KBlessed Be Hope for Three Inc: received $65K on this topicBlessed Be Hope for Three Inc$65KThe University of Texas Medical School at Houston: received $60K on this topicThe University of Texas Medical…$60KOsteogenesis Imperfecta Foundation: received $50K on this topicOsteogenesis Imperfecta Foundat…$50KReveragen Biopharma Inc: received $48K on this topicReveragen Biopharma Inc$48KUniversity of Rochester: received $46K on this topicUniversity of Rochester$46KDuchenne Research: received $39K on this topicDuchenne Research$39KUniversity of Pittsburgh: received $32K on this topicUniversity of Pittsburgh$32KAutism Speaks: received $30K on this topicAutism Speaks$30KOld Dominion University: received $27K on this topicOld Dominion University$27KThe Speak Foundation: received $25K on this topicThe Speak Foundation$25KUniversity of Iowa: received $20K on this topicUniversity of Iowa$20KRutgers University Foundation: received $15K on this topicRutgers University Foundation$15KCold Spring Harbor Laboratory: received $15K on this topicCold Spring Harbor Laboratory$15KTrinds LLC: received $12K on this topicTrinds LLC$12KNationwide Children's Hospital Foundation: received $8K on this topicNationwide Children's Hospital…$8KMuscular Dystrophy Association of Wisconsin: received $3K on this topicMuscular Dystrophy Association…$3K
12 funders, 35 recipients, grants matching “dystrophy” only. Ribbon width is proportional to the total given; each funder has its own colour (smaller funders in gray). Hover a name to isolate its flows, click a funder to open it. Drag to move around; zoom with the buttons, a double-click, or the wheel after clicking the map.

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Source: IRS Form 990-PF Part XV and Form 990 Schedule I, tax years 2019–2025. These are grants already paid, a record of what an organization funds rather than an open call. Private foundations rarely accept unsolicited applications and the route in is usually a program officer; grantmaking charities and associations more often run real application cycles, so check their website. How this data is built, and its limits →